All times are UTC-05:00


Phinfever Home Page

Phinfever Chatroom

Phinfever FAQ




Reply to topic  [ 1 post ] 
Author Message
PostPosted: Wed Sep 19, 2012 6:36 am 
Offline
User avatar
2016 MVP Donor!
2016 MVP Donor!

Joined: Tue Jan 12, 2010 1:33 pm
Posts: 994
Location: West Caldwell, NJ
I meant to post this at the begining of the month, but better late then never.

For those of you that don't know me thru facebook, both of my boys were diagnosed in 2009 with Metachromatic Leukodystrophy Disease, also known as MLD.

This is my way of raising awareness for MLD and Newborn Screening.

For more information about MLD please goto http://www.mldfoundation.org

For information about New Born Screening, please see the Hunters Hope site at http://www.huntershope.org/site/PageServer?pagename=unbs_landing. Yes that is Hall of Fame QB Jim Kelly's son Hunter. They helped us so much during our stay at Duke Children's hospital for the boys' stem cell transplants.

_________________
Image


Top
   
Display posts from previous:  Sort by  
Reply to topic  [ 1 post ] 

All times are UTC-05:00


Phinfever Home Page

Phinfever Chatroom

Phinfever FAQ


Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  
Powered by phpBB® Forum Software © phpBB Limited | Chopped and modified by Coots | Original design by Prosk8r