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 September is Leukodystrophy Awareness Month 
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Joined: Tue Jan 12, 2010 1:33 pm
Posts: 823
Location: West Caldwell, NJ
Post September is Leukodystrophy Awareness Month
I meant to post this at the begining of the month, but better late then never.

For those of you that don't know me thru facebook, both of my boys were diagnosed in 2009 with Metachromatic Leukodystrophy Disease, also known as MLD.

This is my way of raising awareness for MLD and Newborn Screening.

For more information about MLD please goto http://www.mldfoundation.org

For information about New Born Screening, please see the Hunters Hope site at http://www.huntershope.org/site/PageServer?pagename=unbs_landing. Yes that is Hall of Fame QB Jim Kelly's son Hunter. They helped us so much during our stay at Duke Children's hospital for the boys' stem cell transplants.

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Wed Sep 19, 2012 6:36 am
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